{"id":760498,"date":"2021-01-12T07:30:00","date_gmt":"2021-01-12T06:30:00","guid":{"rendered":"https:\/\/dailynewshungary.com\/cn\/5%e5%b2%81%e7%9a%84%e5%8c%88%e7%89%99%e5%88%a9%e5%a5%b3%e5%ad%a9%e6%82%a3%e6%9c%89%e4%b8%80%e7%a7%8d%e5%ae%8c%e5%85%a8%e6%9c%aa%e7%9f%a5%e7%9a%84%e7%96%be%e7%97%85\/"},"modified":"2021-01-12T07:30:00","modified_gmt":"2021-01-12T06:30:00","slug":"5%e5%b2%81%e7%9a%84%e5%8c%88%e7%89%99%e5%88%a9%e5%a5%b3%e5%ad%a9%e6%82%a3%e6%9c%89%e4%b8%80%e7%a7%8d%e5%ae%8c%e5%85%a8%e6%9c%aa%e7%9f%a5%e7%9a%84%e7%96%be%e7%97%85","status":"publish","type":"post","link":"https:\/\/dailynewshungary.com\/cn\/5%e5%b2%81%e7%9a%84%e5%8c%88%e7%89%99%e5%88%a9%e5%a5%b3%e5%ad%a9%e6%82%a3%e6%9c%89%e4%b8%80%e7%a7%8d%e5%ae%8c%e5%85%a8%e6%9c%aa%e7%9f%a5%e7%9a%84%e7%96%be%e7%97%85\/","title":{"rendered":"5\u5c81\u7684\u5308\u7259\u5229\u5973\u5b69\u60a3\u6709\u4e00\u79cd\u5b8c\u5168\u672a\u77e5\u7684\u75be\u75c5"},"content":{"rendered":"<p><strong>CsodaCsoport \u4ec5\u7528\u4e24\u5929\u65f6\u95f4\u5c31\u6536\u96c6\u4e86 110 \u4e07\u798f\u6797(\u8d85\u8fc7 3000 \u6b27\u5143),\u7528\u4e8e\u6cbb\u7597\u60a3\u6709\u6781\u5176\u7f55\u89c1\u9057\u4f20\u75c5\u7684 5 \u5c81\u5c0f\u5973\u5b69\u7684\u53d1\u80b2\u7597\u6cd5\u3002 <\/strong><\/p>\n<p>Fanni\u73b0\u5728\u5df2\u7ecf\u4e0e\u8fd9\u79cd\u5728\u5308\u7259\u5229\u751a\u81f3\u6ca1\u6709\u767b\u8bb0\u6216\u5df2\u77e5\u7684\u75be\u75c5\u4f5c\u6597\u4e89\u4e86\u4e94\u5e74,\u5b83\u662f\u7f55\u89c1\u75be\u75c5\u4e2d\u6700\u7f55\u89c1\u7684;\u5b83\u751a\u81f3\u8fd8\u6ca1\u6709\u540d\u5b57\u3002\u6ca1\u6709\u6cbb\u6108\u65b9\u6cd5,\u4e5f\u6ca1\u6709\u4e00\u79cd\u53ef\u4ee5\u8d77\u4f5c\u7528\u7684\u8865\u6551\u63aa\u65bd\u3002<\/p>\n<p>Fanni\u7684\u75c5\u4ece\u5979\u53ea\u6709\u56db\u4e2a\u6708\u5927\u65f6\u5f00\u59cb,\u5f53\u65f6\u5979\u7684\u5065\u5eb7\u8bbf\u5ba2\u6ce8\u610f\u5230\u5979\u65e0\u6cd5\u81ea\u5df1\u62b1\u5934\u6216\u6253\u5f00\u809a\u5b50,\u4ece\u90a3\u65f6\u8d77,\u5979\u7684\u7236\u6bcd\u5c31\u4e00\u76f4\u548c\u5979\u4e00\u8d77\u53bb\u770b\u533b\u751f,\u4f46\u4e09\u5e74\u591a\u6765,\u4ed6\u4eec\u4e00\u76f4\u8499\u5728\u9f13\u91cc,\u6700\u540e\u5979\u7684\u8840\u6837\u88ab\u9001\u5f80\u82ac\u5170,\u5728\u90a3\u91cc\u68c0\u6d4b\u4e86\u6570\u767e\u79cd\u9057\u4f20\u75be\u75c5\u3002<\/p>\n<blockquote>\n<p>Fanni\u7684\u9057\u4f20\u6027\u75be\u75c5\u88ab\u53d1\u73b0,\u4f46\u968f\u540e\u53c8\u4f20\u6765\u53e6\u4e00\u4e2a\u9707\u60ca:\u5979\u7684\u75be\u75c5\u975e\u5e38\u7f55\u89c1,\u9664\u4e86\u5979\u4e4b\u5916,\u5168\u4e16\u754c\u53ea\u670928\u4eba\u60a3\u6709\u8fd9\u79cd\u75be\u75c5\u3002<\/p>\n<\/blockquote>\n<p><em>\u201c\u79d1\u5b66\u53ea\u77e5\u9053\u4e09\u4e2a\u4eba\u4ee5\u53ca\u4ed6\u4eec\u4e0e\u75c5\u53f2,\u8fd9\u4e9b\u4eba\u7684\u53d1\u5c55\u6c34\u5e73\u5404\u4e0d\u76f8\u540c,\u4ed6\u4eec\u4e2d\u6709\u4e9b\u4eba\u80fd\u591f\u6c9f\u901a,\u80fd\u591f\u79fb\u52a8,\u4f46\u662f\u5982\u4f55\u5462?\u4ed6\u4eec\u53ea\u662f\u5835\u5634,\u8fd8\u662f\u80fd\u591f\u7528\u5b8c\u6574\u7684\u53e5\u5b50\u8bf4\u8bdd,\u4ed6\u4eec\u80fd\u8dd1\u6b65\u8fd8\u662f\u7528\u5a74\u513f\u8f66\u8fc7\u4e00\u751f?\u6211\u4eec\u4e0d\u77e5\u9053\u8fd9\u4e00\u70b9,\u4e5f\u4e0d\u77e5\u9053\u8303\u59ae\u53d1\u5c55\u7684\u6781\u9650,\u7136\u800c\u5979\u5df2\u7ecf\u8bc1\u660e,\u5373\u4f7f\u5728\u4e0d\u53ef\u80fd\u7684\u60c5\u51b5\u4e0b\u4e5f\u6709\u5e0c\u671b\u3002\u201d<\/em> \u8303\u59ae\u7684\u6bcd\u4eb2\u8d1d\u5a05\u7279\u4e3d\u514b\u4e1d\u00b7\u8428\u535a (Beatrix Szab\u00f3) \u8bf4\u9053 <a href=\"https:\/\/www.blikk.hu\/aktualis\/belfold\/oteves-fanni-ritka-genetikai-betegseg-egyetlen-beteg\/jy3kqrf\" target=\"_blank\" rel=\"noopener noreferrer\">blikk.hu,<\/a> \u8c01\u6b63\u5728\u5e26\u5979\u7684\u5973\u513f\u53bb\u4f69\u745f\u7814\u7a76\u6240\u63a5\u53d7\u8fd0\u52a8\u6cbb\u7597\u3002<\/p>\n<p><em>\u201c\u76ee\u524d\u5979\u5df2\u7ecf\u53ef\u4ee5\u81ea\u5df1\u7ad9\u7acb\u4e86,\u501f\u52a9\u4e09\u8db3\u68cd,\u5979\u53ef\u4ee5\u8d70\u8def,\u65e0\u8bba\u52a8\u4f5c\u591a\u4e48\u4e0d\u7a33\u5b9a,\u8fd9\u5df2\u7ecf\u662f\u76f8\u5f53\u5927\u7684\u8fdb\u6b65\u4e86,\u6b63\u5982\u533b\u751f\u4ece\u4e00\u5f00\u59cb\u5c31\u544a\u8bc9\u6211\u4eec\u7684\u90a3\u6837,\u5979\u53ef\u80fd\u6c38\u8fdc\u65e0\u6cd5\u8d70\u8def,\u56e0\u4e3a\u5979\u7684\u808c\u8089\u975e\u5e38\u865a\u5f31\u3002 <\/em><\/p>\n<blockquote>\n<p><em>4\u5c81\u4e4b\u524d,\u5979\u6839\u672c\u6ca1\u6709\u8bf4\u8bdd,\u5728\u8fc7\u53bb\u7684\u516d\u4e2a\u6708\u91cc,\u7136\u800c,\u7531\u4e8e\u5979\u7684\u8a00\u8bed\u6cbb\u7597\u5e08,\u5979\u6b63\u5728\u53d1\u5c55\u5f97\u4ee4\u4eba\u96be\u4ee5\u7f6e\u4fe1<\/em><\/p>\n<\/blockquote>\n<p>\u53f6\u8bf4,\u5979\u7684\u6bcd\u4eb2\u8fd8\u8865\u5145\u8bf4,\u8303\u59ae\u603b\u662f\u5fc3\u60c5\u5f88\u597d,\u5979\u4e00\u76f4\u5728\u5fae\u7b11,\u5ea6\u8fc7\u6240\u6709\u770b\u4f3c\u65e0\u4f11\u6b62\u7684\u6cbb\u7597\u8fc7\u7a0b,\u5979\u4eab\u53d7\u7740\u5979\u53d1\u5c55\u8fc7\u7a0b\u7684\u6bcf\u4e00\u5206\u949f\u3002\u6839\u636e\u8d1d\u5a05\u7279\u4e3d\u514b\u4e1d\u7684\u8bf4\u6cd5,\u5979\u603b\u662f\u5e2e\u52a9\u5979\u6bd4\u5979\u505a\u5f97\u66f4\u7cdf\u7cd5\u7684\u4e0d\u5e78\u670b\u53cb;\u5979\u8bd5\u56fe\u8d70\u5230\u4ed6\u4eec\u8eab\u8fb9,\u5b89\u6170\u4ed6\u4eec\u3002\u5c31\u50cf\u5979\u8bd5\u56fe\u544a\u8bc9\u4ed6\u4eec\u201c\u522b\u62c5\u5fc3,\u4f60\u4f1a\u8ba9\u5b83\u201d<\/p>\n<p>Beatrix\u548c\u5979\u7684\u4f34\u4fa3,Pali\u867d\u7136\u5bf9\u8fd9\u79cd\u75be\u75c5\u7684\u4e86\u89e3\u5f88\u5c11,\u4f46\u5979\u7aed\u5c3d\u5168\u529b\u8ba9\u5973\u513f\u6709\u53ef\u80fd\u8fc7\u4e0a\u5145\u5b9e\u7684\u751f\u6d3b,\u5728CsodaCsoport\u7684\u5e2e\u52a9\u4e0b,\u4ed6\u4eec\u5f00\u59cb\u4e86\u4e00\u573a\u7b79\u6b3e\u6d3b\u52a8,\u4ee5\u786e\u4fdd\u5979\u6574\u6574\u4e00\u5e74\u7684\u6cbb\u7597\u3002<\/p>\n<blockquote>\n<p><em>\u201c\u6211\u575a\u4fe1\u8303\u59ae\u6709\u4e00\u5929\u4f1a\u5728\u7238\u7238\u7684\u821e\u4f1a\u4e0a\u548c\u5979\u8df3\u821e\u3002S<\/em><em>\u4ed6\u662f\u6211\u7684\u5973\u513f,\u6211\u9700\u8981\u76f8\u4fe1\u5979! <\/em><\/p>\n<\/blockquote>\n<p><em>Total\u964c\u751f\u4eba\u80fd\u591f\u5b8c\u5168\u76f8\u4fe1\u6211\u4eec\u7684\u5c0f\u5947\u8ff9,\u8fd9\u7ed9\u4e86\u6211\u4eec\u7ee7\u7eed\u4e0b\u53bb\u7684\u529b\u91cf,\u8c22\u8c22!\u201d<\/em> \u6211\u6dfb\u52a0\u4e86\u8d1d\u5a05\u7279\u4e3d\u514b\u4e1d\u3002<\/p>\n<p>Fanni\u7684\u808c\u8089\u8106\u5f31,\u5979\u9700\u8981\u4e0d\u65ad\u7684\u8fd0\u52a8\u7597\u6cd5,\u81f3\u5c11\u76f4\u5230\u5979\u6210\u957f,\u5982\u679cFanni\u7684\u6545\u4e8b\u89e6\u52a8\u4e86\u4f60\u6700\u8f7b\u5fae,\u4f60\u6709\u529e\u6cd5\u5e2e\u52a9\u5979,\u5373\u4f7f\u53ea\u662f\u90a3\u4e48\u4e00\u70b9\u70b9,\u4f60\u53ef\u4ee5\u901a\u8fc7\u6350\u8d60\u7ed9\u8fd9\u4e2a\u94f6\u884c\u8d26\u6237\u6765\u517b\u5bb6\u7cca\u53e3: <br \/><em>\u8428\u535a\u00b7\u8d1d\u5a05\u7279\u4e3d\u514b\u4e1d<\/em><br \/><em>OTP 11773425-05550627<\/em><br \/><em>\u4f0a\u73ed:HU78 11773425-05550627-0000 0000 <\/em><br \/><em>SWIFT:OTPVHUHB<\/em><br \/><em>\u6d88\u606f:\u963f\u591a\u9a6c\u5c3c<\/em><\/p>\n<p>\u5982\u679c\u4f60\u8fdb\u5165\u4e86\u771f\u6b63\u7684\u6148\u5584\u6a21\u5f0f,\u8bf7\u9605\u8bfb\u8fd9\u4e2a\u60b2\u4f24\u7684\u6545\u4e8b <a href=\"https:\/\/dailynewshungary.com\/cn\/%e5%8c%88%e7%89%99%e5%88%a9%e9%b3%8f%e5%a4%ab%e7%9a%84%e6%82%b2%e5%89%a7%e7%8b%ac%e8%87%aa%e6%8a%9a%e5%85%bb%e5%84%bf%e5%ad%90%e8%80%8c%e8%87%aa%e5%b7%b1%e5%8d%b4%e7%94%9f%e7%97%85%e4%ba%86\/\" target=\"_blank\" rel=\"noopener noreferrer\">\u5308\u7259\u5229\u7236\u4eb2<\/a> \u5931\u53bb\u59bb\u5b50\u540e,\u72ec\u81ea\u629a\u517b\u513f\u5b50,\u540c\u65f6\u88ab\u8bca\u65ad\u51fa\u60a3\u6709\u81ea\u8eab\u514d\u75ab\u6027\u75be\u75c5\u3002&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>CsodaCsoport \u4ec5\u7528\u4e24\u5929\u65f6\u95f4\u5c31\u6536\u96c6\u4e86 110 \u4e07\u798f\u6797(\u8d85\u8fc7 3000 \u6b27\u5143),\u7528\u4e8e\u6cbb\u7597\u60a3\u6709\u6781\u5176\u7f55\u89c1\u9057\u4f20\u75c5\u7684 5 \u5c81\u5c0f\u5973\u5b69\u7684\u53d1\u80b2\u7597\u6cd5\u3002 Fanni\u73b0\u5728\u5df2\u7ecf\u4e0e\u8fd9\u79cd\u5728\u5308\u7259\u5229\u751a\u81f3\u6ca1\u6709\u767b\u8bb0\u6216\u5df2\u77e5\u7684\u75be\u75c5\u4f5c\u6597\u4e89\u4e86\u4e94\u5e74,\u5b83\u662f\u7f55\u89c1\u75be\u75c5\u4e2d\u6700\u7f55\u89c1\u7684;\u5b83\u751a\u81f3\u8fd8\u6ca1\u6709\u540d\u5b57\u3002\u6ca1\u6709\u6cbb\u6108\u65b9\u6cd5,\u4e5f\u6ca1\u6709\u4e00\u79cd\u53ef\u4ee5\u8d77\u4f5c\u7528\u7684\u8865\u6551\u63aa\u65bd\u3002 Fanni\u7684\u75c5\u4ece\u5979\u53ea\u6709\u56db\u4e2a\u6708\u5927\u65f6\u5f00\u59cb,\u5f53\u65f6\u5979\u7684\u5065\u5eb7\u8bbf\u5ba2\u6ce8\u610f\u5230\u5979\u65e0\u6cd5\u81ea\u5df1\u62b1\u5934\u6216\u6253\u5f00\u809a\u5b50,\u4ece\u90a3\u65f6\u8d77,\u5979\u7684\u7236\u6bcd\u5c31\u4e00\u76f4\u548c\u5979\u4e00\u8d77\u53bb\u770b\u533b\u751f,\u4f46\u4e09\u5e74\u591a\u6765,\u4ed6\u4eec\u4e00\u76f4\u8499\u5728\u9f13\u91cc,\u6700\u540e\u5979\u7684\u8840\u6837\u88ab\u9001\u5f80\u82ac\u5170,\u5728\u90a3\u91cc\u68c0\u6d4b\u4e86\u6570\u767e\u79cd\u9057\u4f20\u75be\u75c5\u3002 Fanni\u7684\u9057\u4f20\u6027\u75be\u75c5\u88ab\u53d1\u73b0,\u4f46\u968f\u540e\u53c8\u4f20\u6765\u53e6\u4e00\u4e2a\u9707\u60ca:\u5979\u7684\u75be\u75c5\u975e\u5e38\u7f55\u89c1,\u9664\u4e86\u5979\u4e4b\u5916,\u5168\u4e16\u754c\u53ea\u670928\u4eba\u60a3\u6709\u8fd9\u79cd\u75be\u75c5\u3002 \u201c\u79d1\u5b66\u53ea\u77e5\u9053\u4e09\u4e2a\u4eba\u4ee5\u53ca\u4ed6\u4eec\u4e0e\u75c5\u53f2,\u8fd9\u4e9b\u4eba\u7684\u53d1\u5c55\u6c34\u5e73\u5404\u4e0d\u76f8\u540c,\u4ed6\u4eec\u4e2d\u6709\u4e9b\u4eba\u80fd\u591f\u6c9f\u901a,\u80fd\u591f\u79fb\u52a8,\u4f46\u662f\u5982\u4f55\u5462?\u4ed6\u4eec\u53ea\u662f\u5835\u5634,\u8fd8\u662f\u80fd\u591f\u7528\u5b8c\u6574\u7684\u53e5\u5b50\u8bf4\u8bdd,\u4ed6\u4eec\u80fd\u8dd1\u6b65\u8fd8\u662f\u7528\u5a74\u513f\u8f66\u8fc7\u4e00\u751f?\u6211\u4eec\u4e0d\u77e5\u9053\u8fd9\u4e00\u70b9,\u4e5f\u4e0d\u77e5\u9053\u8303\u59ae\u53d1\u5c55\u7684\u6781\u9650,\u7136\u800c\u5979\u5df2\u7ecf\u8bc1\u660e,\u5373\u4f7f\u5728\u4e0d\u53ef\u80fd\u7684\u60c5\u51b5\u4e0b\u4e5f\u6709\u5e0c\u671b\u3002\u201d \u8303\u59ae\u7684\u6bcd\u4eb2\u8d1d\u5a05\u7279\u4e3d\u514b\u4e1d\u00b7\u8428\u535a (Beatrix Szab\u00f3) \u8bf4\u9053 blikk.hu, \u8c01\u6b63\u5728\u5e26\u5979\u7684\u5973\u513f\u53bb\u4f69\u745f\u7814\u7a76\u6240\u63a5\u53d7\u8fd0\u52a8\u6cbb\u7597\u3002 \u201c\u76ee\u524d\u5979\u5df2\u7ecf\u53ef\u4ee5\u81ea\u5df1\u7ad9\u7acb\u4e86,\u501f\u52a9\u4e09\u8db3\u68cd,\u5979\u53ef\u4ee5\u8d70\u8def,\u65e0\u8bba\u52a8\u4f5c\u591a\u4e48\u4e0d\u7a33\u5b9a,\u8fd9\u5df2\u7ecf\u662f\u76f8\u5f53\u5927\u7684\u8fdb\u6b65\u4e86,\u6b63\u5982\u533b\u751f\u4ece\u4e00\u5f00\u59cb\u5c31\u544a\u8bc9\u6211\u4eec\u7684\u90a3\u6837,\u5979\u53ef\u80fd\u6c38\u8fdc\u65e0\u6cd5\u8d70\u8def,\u56e0\u4e3a\u5979\u7684\u808c\u8089\u975e\u5e38\u865a\u5f31\u3002 4\u5c81\u4e4b\u524d,\u5979\u6839\u672c\u6ca1\u6709\u8bf4\u8bdd,\u5728\u8fc7\u53bb\u7684\u516d\u4e2a\u6708\u91cc,\u7136\u800c,\u7531\u4e8e\u5979\u7684\u8a00\u8bed\u6cbb\u7597\u5e08,\u5979\u6b63\u5728\u53d1\u5c55\u5f97\u4ee4\u4eba\u96be\u4ee5\u7f6e\u4fe1 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Beatrix\u548c\u5979\u7684\u4f34\u4fa3,Pali\u867d\u7136\u5bf9\u8fd9\u79cd\u75be\u75c5\u7684\u4e86\u89e3\u5f88\u5c11,\u4f46\u5979\u7aed\u5c3d\u5168\u529b\u8ba9\u5973\u513f\u6709\u53ef\u80fd\u8fc7\u4e0a\u5145\u5b9e\u7684\u751f\u6d3b,\u5728CsodaCsoport\u7684\u5e2e\u52a9\u4e0b,\u4ed6\u4eec\u5f00\u59cb\u4e86\u4e00\u573a\u7b79\u6b3e\u6d3b\u52a8,\u4ee5\u786e\u4fdd\u5979\u6574\u6574\u4e00\u5e74\u7684\u6cbb\u7597\u3002 \u201c\u6211\u575a\u4fe1\u8303\u59ae\u6709\u4e00\u5929\u4f1a\u5728\u7238\u7238\u7684\u821e\u4f1a\u4e0a\u548c\u5979\u8df3\u821e\u3002S\u4ed6\u662f\u6211\u7684\u5973\u513f,\u6211\u9700\u8981\u76f8\u4fe1\u5979! 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